An update to share, but not the best of news. It seems that the tumor board met together last week, and have made their decision regarding Ashley's current state. Her oncologist called me the day before yesterday, and said that due to her symptoms and the growth of the right tumor,.. they feel we should proceed with therapy. Yes, chemotherapy. My heart has sunk into my ankles, and my head is currently in a dense fog. We knew this was coming sooner or later, but I just don't think any parent can be fully ready for those words, or any unpleasant news at any point in their child's life. While I am thankful that there is treatment,.. I am also saddened to know what lies ahead for my sweet shining star of a little girl. Please be praying for Ashley, and for our family. Please pray for my own strength as well because my heart has taken on so much these past two years, and although my faith is incredibly strong,.. I am, afterall, only human, and I, too, need to be held up from time to time. Things were going along fairly well, and now I feel as though I'm spinning again. Make it stop, my heart pleads.
The good thing,.. I have good friends. I also have friends who have already walked in my shoes and they've done it down the same path. I am thankful to know other NF families. We need eachother, that's for sure... even if we are all normally too busy in our own happenings of life to be in touch regularly. We know we're out there, and we know how eachother feels. We know we are not alone.
We've been sick the last few weeks,.. crummy stuff going around, but Ashley has managed not to get it a second time. I've had a splitting headache all week, and the latest news coming from the hospital hasn't helped, but I am starting to feel better now.
Ashley will be seeing the ophthalmologist on Wednesday morning. We'll find out then if her field of vision is narrowing as her oncologist fears. It is felt that her MRI should be moved up even sooner now, too.
Wednesday afternoon we also will be meeting with our insurance broker to finish up on the new group insurance through our company. We are going with the best through KP which will cover everything 100% after $5. copays for office visits. What a blessing! It should be in effect by the 1st of February, and if her oncologist had his way, he says he would prefer we had our first appts with the new doctors by the following day. We will do our best, of course. He says he plans to work closely with her new doctors on his findings and his personal feelings,.. hoping things won't get delayed with the transfer. It'll all be the best for Ashley, but a delicate transition at a critical time as well.
I will update on other things at a later time. I am doing this update right before bed, and am exhausted beyond all reason tonight.... Godspeed to all. I know we each have our own things in need of prayer, love & support.... you are all in mine and have mine, as we hope we continue to be in your's. Much love & goodnight.
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