Ashley has been accepted by two wonderful organizations to be a recipient for their beautiful quilts. Both of these organizations, Love Quilts and Quilting Angels, create magnificant quilts for sick children. Not just terminal kids, as many organizations, but these organizations also cater to children with life-long illnesses & disorders like Ashley. Women from around the world help to make the quilt squares, and a lot of time, effort, and most of all, love, is put into these quilts, and it is truly an honor to recieve such a tremendous, treasured gift. Ashley's quilts are anticipated to be created and delivered sometime mid-2005, and we are very excited for both of them!! We will keep you posted on when Ashley gets posted to their sites,.. in the meantime, please take time to check them out. lovequilts.org and quiltingangels.org
Oh! Ashley lost her first tooth!! About a week ago, the girls were all playing & rolling around, and out it popped!! She was soooooo excited, and she thinks that the Tooth Fairy is a pretty awesome gal!! We'll try to get some new pics posted this week of her new grin!! She looks too cute with that missing tooth! Actually, all THREE of the girls are missing teeth now!
Ashley also saw her oncologist again yesterday... her next MRI will be sometime in the next couple of weeks. She'll also have another follow-up with him, as well as her ophthalmologist. She is on a break from her anti-seizure medication, but will go back on probably in the next month or so. At that time, she'll change to double dosages twice a day. At this next MRI, she will also have another MRA.
Scott's mom, Carol, started chemo again on the 17th. This starts her thirdt round in 2 1/2 years,.. so far, it seems to be going okay on her. She hasn't gotten terribly sick this time. She goes in for a nuclear scan next Monday. She is, of course, pretty tired, and I worry about her getting enough rest, but she is strong. I just love her so!
Well, another week and a half and we will get to go camping again for Labor Day Weekend, and we can't wait! It is such a great chance to get away and just 'breathe',.. I know I've said that many times before, but these excursions mean so much to us. It's such a nice break, getting up into the mountains to just relax and enjoy ourselves...
And on that note, I think I'll wrap this up. I think it sounds like a good time to fix a hot cup of herbal tea, and sit & watch the rain.
Tuesday, August 24, 2004
Monday, August 09, 2004
My cup runneth over!
I'm not even sure where to start,.. it's almost midnight, but I can't sleep without posting on this. Scott got home about a half hour ago, and he had huge news,.. news that has left me spinning & reeling between emotions of happiness, tears, and sheer shock. I don't know if I will even be able to put this into words that it deserves, but I'm going to try so please bear with me,.. it's just the most incredible thing that I feel like I'm nearly having an out of body experience.
Tonight was the monthly business meeting at the Fire Dept., and as I understand it,.. a great deal was discussed about Ashley, her NF, and our mounding medical bills for her treatment. For those of you whom are unfamiliar, I want to tell you something,.. they don't call it a 'Brotherhood' for nothing. There is a great deal of pride & honor built up in the family that is firefighters. "Never leave a man behind", they say,.. well, let me tell you, they don't. And as it has been proven on this very night,.. that doesn't just apply on-the-job.
After learning about Ashley in casual conversation last week, the Deputy Chief of our district decided to take on the task of bringing Ashley's circumstances to light in the hearts of everyone he knows. And for starters, he put together information from his conversation with Scott, as well as Ashley's website, and tonight our fellow FF brothers & sisters learned about Ashley and her NF. They learned about how fast her medical needs build up in out-of-pocket costs, and then,.. then, they pulled together to contribute to Ashley's Fund. Tonight, the FD Board voted to donate a large sum of $ to Ashley's Fund, and then, if that weren't generous enough,.. the men and women of Station's #1, #2, #3, #4, #5, #6, and #7 passed around a fireman's helmet and took up a personal collection!! This was additional money out of these individual's own pockets!! Several people came up to Scott, and told him of other ways that they want to help, personally, and apparently a commitee is even being put together for further assistance... I am nearly speechless.
I just don't know what to say that will adequateIy describe the feelings of amazement and gratitude I am feeling. I have been a fireman's wife for nearly 12 years now, and I've always been so proud of that honor, but I have to tell you,.. my cup just runneth over!! I don't know whether to laugh or cry or both, but believe me, I've done it all tonight... I'm just in utter shock.
I never would have dreamed that this kind of help & support would come like this,.. when I think of things happening like this, I usually think of families who have children so much worse off, and so in a way, I guess I feel sort of strange,.. like, do we deserve this when so many others are out there in tougher situations? But, we have all these people surrounding us now, and they are so kind, and so caring, they're so supportive and so generous, and they keep reassuring us that we do deserve help... that we don't have to wait for that help until we've completely gone under... that instead, we deserve help to keep us from getting to that point. And that just amazes me,... it utterly amazes me!!
God filled that room with angels tonight... and even though I physically wasn't there,.. I felt their touch. I know Scott definitely did, too. This is such a generous gift that is unmeasureable in words, but we truly are so greatful.
I can't thank you all enough,.. each & every one of you with the MCFD!
Tonight was the monthly business meeting at the Fire Dept., and as I understand it,.. a great deal was discussed about Ashley, her NF, and our mounding medical bills for her treatment. For those of you whom are unfamiliar, I want to tell you something,.. they don't call it a 'Brotherhood' for nothing. There is a great deal of pride & honor built up in the family that is firefighters. "Never leave a man behind", they say,.. well, let me tell you, they don't. And as it has been proven on this very night,.. that doesn't just apply on-the-job.
After learning about Ashley in casual conversation last week, the Deputy Chief of our district decided to take on the task of bringing Ashley's circumstances to light in the hearts of everyone he knows. And for starters, he put together information from his conversation with Scott, as well as Ashley's website, and tonight our fellow FF brothers & sisters learned about Ashley and her NF. They learned about how fast her medical needs build up in out-of-pocket costs, and then,.. then, they pulled together to contribute to Ashley's Fund. Tonight, the FD Board voted to donate a large sum of $ to Ashley's Fund, and then, if that weren't generous enough,.. the men and women of Station's #1, #2, #3, #4, #5, #6, and #7 passed around a fireman's helmet and took up a personal collection!! This was additional money out of these individual's own pockets!! Several people came up to Scott, and told him of other ways that they want to help, personally, and apparently a commitee is even being put together for further assistance... I am nearly speechless.
I just don't know what to say that will adequateIy describe the feelings of amazement and gratitude I am feeling. I have been a fireman's wife for nearly 12 years now, and I've always been so proud of that honor, but I have to tell you,.. my cup just runneth over!! I don't know whether to laugh or cry or both, but believe me, I've done it all tonight... I'm just in utter shock.
I never would have dreamed that this kind of help & support would come like this,.. when I think of things happening like this, I usually think of families who have children so much worse off, and so in a way, I guess I feel sort of strange,.. like, do we deserve this when so many others are out there in tougher situations? But, we have all these people surrounding us now, and they are so kind, and so caring, they're so supportive and so generous, and they keep reassuring us that we do deserve help... that we don't have to wait for that help until we've completely gone under... that instead, we deserve help to keep us from getting to that point. And that just amazes me,... it utterly amazes me!!
God filled that room with angels tonight... and even though I physically wasn't there,.. I felt their touch. I know Scott definitely did, too. This is such a generous gift that is unmeasureable in words, but we truly are so greatful.
I can't thank you all enough,.. each & every one of you with the MCFD!
Little 'spy'
Ashley has been doing alright, although she has been having more pain episodes today. She had a pretty nasty one this afternoon that was pretty difficult to bear, and it was difficult to see her go through another one so intense like that. She has been doing better about taking her anti-seizure medication though... it still takes encouragement, but she's doing a lot better about it again.
Her teeth are still very, very loose, and she asks me to pray every night that they will come out so that the Tooth Fairy can come visit her,... after my last post where we realized she HAD her first loose teeth,.. well, remember how I said that the other girls have loose teeth also? The very next morning, Brittney lost one of her's! We noticed that she has another loose one also now, and if Courtney's other one doesn't fall out here pretty soon, we may need to go in and have it pulled,... it's causing her a lot of discomfort, but just won't quite pop out. Ashley tried to stay up to spy on the Tooth Fairy as she came for Brittney's tooth, but alas she just couldn't catch her!
Her teeth are still very, very loose, and she asks me to pray every night that they will come out so that the Tooth Fairy can come visit her,... after my last post where we realized she HAD her first loose teeth,.. well, remember how I said that the other girls have loose teeth also? The very next morning, Brittney lost one of her's! We noticed that she has another loose one also now, and if Courtney's other one doesn't fall out here pretty soon, we may need to go in and have it pulled,... it's causing her a lot of discomfort, but just won't quite pop out. Ashley tried to stay up to spy on the Tooth Fairy as she came for Brittney's tooth, but alas she just couldn't catch her!
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